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Positive friendship
Hannah Gibbs finds that giving medical advice can be surprisingly difficult
When I started university in 1994, it
was time to wave goodbye to several of my friends, most of whom
were also moving away to study. We all
agreed to meet up during the holidays, and
I expected them to return with a host of
drunken anecdotes or maybe a new boy/girl
friend. What I did not expect, however, was
for one of them to come back with HIV.
"Fred" (not his real name) has been a friend
of mine for several years; we met through our
mutual piano teacher and became friends
through repeatedly bumping into one another at exams. Six years into the friendship, dur-
ing his first year away at university, he came
out and told me that he is gay. Things took a
more serious turn when I received a message
from Fred, who told me that his new boyfriend
was HIV positive. Being active on the gay
scene, Fred was of course very aware of the
presence of HIV, only this was the first time
that he had been close to anyone who had the
virus. It transpired that they had not yet done
anything intimate as they were still in the early
stages of their relationship, but things were
moving that way, and Fred thought he'd ask
me, as a medic, if I had any advice.
Fred, told me that his new boyfriend was HIV positive.
What do you say? Simply talking about the
importance of safe sex and condoms seemed
patronising, and, to be honest, I was a bit reluctant to go into the intimacies of anyone's sex
life-whether homo- or heterosexual. So I told
him that what he did with his partner was his
own business, but urged him to be careful. A
few months later, Fred was no longer seeing
his boyfriend, and I went to visit him during
the summer holidays. It was then that the subject of HIV testing came up.
Fred was wondering whether he should
have a test, given the circumstances of his last
relationship. Upon further discussion it came
out that in addition to being worried about
the risk from his ex, Fred had also had
unprotected sex with two other people on
different occasions. I was initially shocked to
hear this-Fred is intelligent and sensible, and
living in the late 1990s when the risks are well
known and publicised; I could not believe
that he had ignored the warnings. I soon
realised, however, that this was a rather hypocritical view. During placements in general
practice I have seen many girls requesting the
"morning after pill," following either drunken unprotected intercourse, or the splitting
of a condom. People in these situations tend
to be considered more "responsible" for taking measures to prevent an unplanned pregnancy, and I am certain that none of these
people are also offered HIV prophylaxis.
There is advice in hospitals on what to do following a needlestick injury, but I cannot find
any references to postcoital prophylaxis. In
answer to Fred's query, I passed on the
knowledge that HIV antibodies can take up
to three months to be detected following
infection, and advised Fred to think very carefully about getting tested. And, more importantly, to get some proper advice from a trained person, not just from a medic friend
when both parties are semi-inebriated.
For some time after this I did not hear from
Fred. I assumed that, like myself, he was busy,
and being away on placements I tended to
neglect people that weren't living in and
around Cardiff. I did think of Fred, however,
during my infectious diseases week, when I
was asked to examine a patient with a lung
tumour and malignant effusion. I assumed
that the man, who looked in his sixties, had
been a smoker and had developed lung cancer as a result. I was later told the patient was
only in his early forties and suffering from
AIDS. I thought that it was very upsetting that
anyone should have to suffer so much over a
disease that is preventable, and wondered
whether Fred had got round to being tested.
During one of our infrequent holidays, I
went back home and saw Fred in the middle
of town. It was a big surprise, and once we
had greeted each other we went for a coffee.
I assumed that Fred would have graduated
and found a job by now, but he told me that
he had been ill recently and so had put things
on hold. And just by looking at Fred, I knew
what he meant by being ill. Whether it was
the small plaster on his arm covering the site
of a blood test, or whether it was something
else about him, I don't know, but I realised
then that Fred had caught HIV. We skirted
around the issue for a few minutes. Fred
finally said that he had caught HIV and had
been in hospital for four months with AIDS
related pneumonia.
What on earth do you say when a close
friend tells you something like that? "I'm
sorry" seems so lame, and there's not a lot you
can say or do in the middle of a shopping
precinct. As "tomorrow's doctors," we are
taught so much about how to break bad news
and how to communicate effectively with
patients in difficult situations, but nothing I
had been taught was any help in responding
when a friend tells you this. Although in the
past we had been able to talk for hours about
anything, it was surprising initially how awkward it was trying to have a normal conversation, with this bombshell hanging over you.
In some ways it is similar to on the wards
when, as inexperienced freshers, we had to
take histories from patients who had advanced
cancer, and tried to be overly happy and positive, knowing that the prognosis isn't great.
HIV is not something that you can send to the surgeons to cut out
But HIV is different-it's not something that
you can send to the surgeons to cut out, and
even with the combination treatment available, the prognosis varies so much between
individuals. Later that evening we went to the
pub, and things were a bit easier, as long as we
stayed off the subject. But it was always there-
Fred has to take 14 tablets per day, and four
of them were sitting in a box next to the ashtray, to be taken at the correct time.
Fred doesn't know how he caught the virus-
he can speculate about the route of transmission, but he said that he has almost always been
careful. Unfortunately, it seems that one of the
isolated incidents may have been enough, and
these events have resulted in huge conse-
quences. The impact it has on me, his friend,
is negligible compared with what Fred has had
to go through, but for me it has put a human
side on a condition that is still subject to major
prejudice and stereotyping. When we were in
the pub, we had a swig out of each other's bottles, and even small things such as this made
me think, initially-what if I had a tiny cut on
my mouth, what if he has, too? As I know that
HIV cannot be transmitted in this way, I felt
ashamed at myself for even considering it, but
with a condition that raises this much fear and
uncertainty, it is not unnatural to have many
concerns and questions.
Fred has asked me several times what I
know of the prognosis for HIV, and I am
unable to give any answers. Nobody can say
what the future holds HIV sufferes whether
it be tomorrow, next week, or next century,
but at the moment I am not ready to lose my
wonderful, talented friend, and I hope that
he is one of the luckier ones.
Hannah Gibbs fifth year medical student
University of Wales College of Medicine, Cardiff
Fred's name and certain other details have been changed in order to protect his identity.

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