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The meaning of social inclusion

Driving home after finishing the day's work, I noticed someone familiar walking down the hill. There was nothing unusual about a middle aged man taking a stroll that glowing summer evening. But he was wearing an apron and holding a cup of coffee in his hand that was spilling over his clothes. Although there were people around, no one was paying him any attention. While driving past, I remembered seeing him before in a residential home for people with learning disabilities. I took the next turn, came back up the hill, and approached him after parking the car. Some passers by ignored him; some changed their way and went to the other side of the road. Some drivers slowed down and glanced in surprise, but resumed their course as if they had changed their mind. Although people realised that something was wrong, no one was willing to intervene.

It was not difficult to persuade the man to accept a lift, and soon we were headed towards the residential home, where the staff had reported his absence to the police an hour before. I found out that he had been discharged from the institution where he had lived for years. He now lives at a residential home for people with learning disability. He had lost touch with his family and had had no visits from family or friends, as far as the staff could remember.

Returning home and extremely sad, I tried to remember what I have heard about the social inclusion of people with learning disability. We have been arguing for changes in attitudes towards people with learning disability. But has this changed their daily problems of prejudice and social exclusion? Although living in the community has provided an opportunity for social integration, there are many obstacles in achieving this, especially in people with severe and profound learning disability, who lack the language and communication skills to interact with others.

My experience shows that you can live in a community but still be effectively excluded from it. Prejudice and negative attitudes towards people with learning disability can be reduced by personal contact in ordinary places and sharing activities together. Culturally sensitive educational interventions should encourage people to support the integration of people with learning disability. Innovative approaches using the internet and other media should be explored to strengthen this.


WILLANDDENIMCINTYRE/SPL
Cri de coeur

Recently, a number of pieces of legislation such as the Valuing People white paper and the Disability Discrimination Act have brought about changes in planning and delivering services for people with learning disability, supporting them to enjoy the same rights as everyone else. But if deinstitutionalisation is not to turn into reinstitutionalisation, we need a nationwide campaign to make sure that people with learning disabilities are given enough support to gain their personal rights and identities, and to be valuable members of our society. As part of the medical community, we all have central roles in achieving this.

Competing interests: None declared.

Reza Kiani, specialist registrar in learning disability, Leicester Frith Hospital
Email: Reza.kiani@leicspart.nhs.uk


studentBMJ 2006;14:309-352 September ISSN 0966-6494



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