Letters from my cousin
Keletso Maribe Maribe explores the individual tragedy that underlies HIV/AIDS in
sub-Saharan Africa
There was a bit of
irritation on my hands from all the dust collecting on top of the wardrobe.
Who would have ever thought that one would have to do as much dusting in
England as I did back in the little unpaved, dry, poverty stricken,
sub-Saharan African village I come from. At least that is the imagery even
an African like myself gets whenever "sub-Saharan" Africa is
mentioned. I stood on my toes so as to reach a bit further: "If I am
going to pass the exam in two days then I really have to find those x ray
films," I thought. Suddenly, a ray of hope as I felt a bit of... Oh
no. Not these. Not now. Please god, not the letters...
Kobojango, Botswana12 February 2002
Ntsalaka
I know it has been a while since I have written to you.
How have you been? How is the UK? I am sure you are having the time of your
life, especially seeing that I haven't heard from you in such a long
time. How is med school? I bet you are enjoying yourself. If you are
wondering, everybody is alright, your nephew Kabo is now talking. He will
be a big man the next time you see him. When are you coming home anyway? We
miss you a lot, Cuz.
Hey cuz, I know we have not talked in a while, but
there is something I really have to tell you. A few months ago, I started
getting little pimple-like things on my skin that would then rupture and
become wounds. Apart from being very painful, they took forever to heal and
the scars have totally deformed me. I got better at one point, after the
doctor gave me the purple stuff grandma used to pour on our wounds when we
were kids. Remember when we would graze our knees while playing football
with the neighbourhood kids? Yah, that stuff, you would know the name, I
suppose.
Grandma's purple stuff did cure my wounds. The
thing is about a month later I started getting the wounds again. This time
they were much bigger and more uncomfortable, but that's not all I
had. I got tired really easy and even breathing was a task. I was taken to
the hospital, and that bastard of a doctor did not even look at me before
he said "I think it's the big disease." Is that how all
doctors are, cuz? Is that what they teach you in the last year of med
school, or is this guy just sick of his job? I am sure you will be a much
better doc though; please promise me you will be better than that. Anyway,
I was in and out of hospital for a while, and each time I was in I refused
to get tested for HIV just to get back at that quack. I am not sure how
that would help me get back at him, but I assure you, I did get some
satisfaction from it.
In the end I agreed to the test, and somehow I was at
ease to know that mine and everyone else's suspicion was confirmed. I
am HIV positive. Don't worry, cuz, I have accepted it; it's a
disease like any other. It was the way I got tested that I am not happy
about. Yes, I was counselled, but that just made me more scared before and
after the test, and I am not sure if the counsellor noticed it at all. The
lady asked me what I would do if I tested positive. What could I possibly
do? As far as I am concerned I am only as useful to this world as a
statistic is now, after all I am one of the traitors that you have always
talked about. You know, the ones that give sub-Saharan Africa a bad name?
Sorry about that, Cuz.
(Ntsalaka means cousin in Setswana, the main language
spoken in Botswana.)
Damn it, I could not find the rest of the letter.
Nostalgic and emotional as they made me, I never read just one of these
letters at a time. Perhaps it explains why I hated reading them, especially
when I had something as important as an exam to prepare for.
Kobojango, Botswana8 June 2002
Ntsalaka
Thank you for your comforting letter, I cannot tell you
how much it means to me to have the only "doctor" I trust in
this world telling me that all will be fine. I hate to tell you that
nothing is getting better though. They say I have TB now,
"secondary" to the HIV. Oh, it gets worse, I have a lump in my
neck that they sampled to test for cancer, and apparently if it is cancer
then I will have much shorter to live. Why has nobody ever told me this
would happen? Couldn't they have said so when I tested positive? You
know I could have braced myself for it, cuz, you know how much I like to
prepare for things like that! Oh well, such is life, I suppose.
It is very painful; it aches all over. It hurts even
more when they take my bloods and when they "sample" my lumps.
Oh, believe me, I am not talking about the pain from the needles and
surgical knives. No, I am used to the needles now. I even use them on
myself sometimes when the nurses are too disgusted to touch me or the many
other HIV/AIDS patients in this ward. What really hurts is knowing that
although they draw my blood and cut pieces off me I will not get better.
They, however, will still have something scientific and intelligent to talk
about during the long mid morning tea breaks that African doctors are so
fond of. You know what I am talking about, don't you? You surely
remember how it was to be a patient back here, don't you? How mighty
and intelligent the doctors looked? Is that why you chose to be a doctor,
cuz, or do you want your patients to come before your mid-morning tea
breaks? I am sure you are in it for the better of the two; I know that you
are better than that.
You asked me about antiretroviral drugs last time.
Don't forget that this is Africa, or maybe it's the same over
there as well, but I doubt that very much. Apparently my CD4 count should
be below a certain level before I can have the privilege of
antiretrovirals. This means that I have to be worse than I am right now,
right? All I know is that if I get worse than I am right now I would never
want to get better, I'd rather they let me go than keep me capable of
having worse pain than I currently do. What would you do?
I don't mean to be rude, cuz, but I need to rest
now. I look forward to your next letter; it makes me happy to know that you
are doing much better than I am. Remember, you are living a dream that many
would kill for. Keep well.
Your cousin
Kokobele
I like to believe that one of the toughest questions
anybody can ever ask a medical student is why they chose medicine as a
career. For me, it has always been the easiest. A simple answer about how I
want to go back home and help the "situation"-works every
time, and it usually also elicits showers of praise for my nobility and
loyalty to my needy homeland.
However, this question coming from my own
patient-cousin meant a completely different thing. It was more about
whether I am going to cope with the harsh reality that is health in Africa,
especially having trained in the comparative comfort of England. How far
will the principles of good doctor-patient relations that have been drilled
so hard into my head for the past few years take me in a system where the
doctors are so frustrated and tired of trying? To be doctors in Africa,
they surely must have started with very honourable reasons much similar to
the ones I have now.
They are right you know, sometimes ignorance is bliss.
Damn these letters.
By now I had decided that it was too late to stop, I
went on to the next letter.~
I like to believe that one of the toughest questions
anybody can ever ask a medical student is why they chose medicine as a
career. For me, it has always been the easiest. A simple answer about how I
want to go back home and help the "situation"-works every
time, and it usually also elicits showers of praise for my nobility and
loyalty to my needy homeland.
However, this question coming from my own
patient-cousin meant a completely different thing. It was more about
whether I am going to cope with the harsh reality that is health in Africa,
especially having trained in the comparative comfort of England. How far
will the principles of good doctor-patient relations that have been drilled
so hard into my head for the past few years take me in a system where the
doctors are so frustrated and tired of trying? To be doctors in Africa,
they surely must have started with very honourable reasons much similar to
the ones I have now.
They are right you know, sometimes ignorance is bliss.
Damn these letters.
By now I had decided that it was too late to stop, I
went on to the next letter.~
Kobojango, Botswana19 November 2002
Ntsalaka
The end is near, I can feel it. I feel no pain anymore.
I do not want to see a doctor of any sort anymore, forgive me, cuz, but it
is true. Last month, Uncle Banki suggested we go and see a traditional
doctor up north that a friend of his from work recommended. I know you are
against this, but I had no choice, in desperation even the most ridiculous
thing could make the greatest sense. What else was I to do; it is obvious
that even your rational type of medicine cannot come up with a rational
cure for a disease they claim to so rationally understand.
Anyway, the black cow my dad selected for the offering
must have not been black enough to cure me. I wish I had refused to go; at
least my siblings would have something left for them to eat after I pass
on. Now that I think about it, all healers are the same, they love cutting.
They take a sample of some sort and they try to do with it something only
they understand. Either they mix it with stuff and add it to their
statistics, or mix it with stuff and add it to their ancestral offerings.
And then in the end you all want us to drink concoctions that taste so
horrible and yet not make us even a bit better.
If I had the strength I would take my own life you
know, I bet it would not hurt that much. After all I am just a pile of
bones now; maybe that is why I don't feel much pain any more. Is that
why, cuz? Do bones feel pain as much as flesh does? Who am I fooling, what
use would that sort of knowledge be to me?
The priest comes to hold prayers everyday now, bless
that old man. He does not care for the rotten smell of my diapers that
revolts everyone-myself included. You should have become a priest,
cuz; they do more healing with words than doctors do with their needles and
scalpels. They bring peace to the soul. I regret not having faith during my
more active days. I would not be writing you this letter today. Anyway, be
good, cuz, and study hard. I told you before; you are going to be my family
doctor some day.
Yours
Kokobele
To this day he still gives me a piece of his mind
whenever I remember to look on top of my wardrobe.
Two days after I received this one my mother called.
Kokobele was gone.
Keletso Maribe Maribe , medical
student, Leeds University Medical School
Email: ugm3kmm@leeds.ac.uk
studentBMJ 2006;14:441-484 December ISSN 0966-6494